Noah had a follow-up appointment last Friday with the surgeon who did his pullthrough for Hirschsprung’s Disease. Dr. L said that Noah looked wonderful; he is eating, growing, and most importantly – in the realm of this disease – pooping on his own. Noah is no longer on any kind of baby food. 99% of the time he eats the same breakfast, lunch and dinner we are eating, although I do cut his up into smaller pieces than ours, of course, and we still don’t feed him bananas or rice. We haven’t irrigated him since March. Dr. L said that Noah’s abdominal X-ray is the real proof of how well he’s doing; there is no damage, no blockage, and everything looked great on the film. Dr. L said that he wants to know when we start to potty train, since children with HD can have issues with toilet training, but if everything continues to go this well, Noah won’t ever have to have another checkup with him. We were so excited to hear this great news! I can’t believe that this time one year ago we were dealing with hospitalizations, biopsies, X-rays, contrast studies, daily irrigations, and surgery. Staring in the face of that kind of whirlwind, I felt like we would never see the other side of it. Thank God for modern medicine and fantastic doctors like Dr. L!
Hirshsprung’s Disease obviously had a huge impact on our lives, and it may still rear its ugly head later with Noah or any other children we may have in the future. We will keep praying for all the babies, children and families who are living with this disease.

Noah with his daddy, Nathan. My two HD survivors.